6 Week Check

And all is well even if I cried.....a lot! :)


Am pretty sure this is not connected to the trial but more with the whole situation, so won't go into detail here.


Blood pressure and bloods were fine. We discussed the side effects I'm experiencing, which are as of today

• Extremely sore feet
• Slightly sore hands
• Dizziness
• Bouts of diarrhea 
• Itchy sore scalp

Apart from the feet, they are mild and manageable. Feet and hands are in good shape though as I've really been looking after them, with plenty of moisturisers and regular softening foot baths. They was some concern that I was needing to take painkillers and we discussed reducing the dose. I'm on two tablets, twice a day. 


I have however elected to stay on this dose for a bit longer and see what happens. Most side effects are reducing the longer I take them as my body adjusts. I'm not back at work yet, so if I'm having a bad foot day it doesn't have too much of an impact.


I'll review it in two weeks and if there's no improvement will call and see about reducing


Next appointment is 11th of September, I need to get bloods and a chest x-ray just before. 


All in all, things are ticking along. 

Update - Sunday 15th of July

Things are a bit meh! at the moment. I'm not good, but I'm not bad either. I don't feel right, but there's nothing drastically wrong either. My dosage was doubled two weeks ago and possible effects (because I do believe some things are in my mind) are

• Very sore feet*, upto a pain score of 7
• Itchy and sore scalp (have to think about when I comb my hair)
• Mouth ulcers, although I don't have any today
• Dizzy spells
• Travel sickness even when I'm driving (just plain weird!)
• Sore hands which are sensitive to water temperature

Nothing to write home about, but its really getting me down. I like to walk, to improve my mood and for general fitness, but this is heavily curtailed. Am hoping I get used to it, if not, I'm not sure how long I can keep up with it.

On the plus side, blood pressure isn't any higher than it was and general nausea has gone (apart from the travel sickness)

Have got my six week review next week, will speak to the clinicians then

*the feet look like there are little pouches just under the skin, which are swollen. It doesn't appear to be the muscle but the skin which is sore. I am moisturising, moisturising, moisturising.